YEA! YEA! YEA!!!

It finally happened! I have gotten respite care. It is through the VA. We only get 2 ½ days a month; it may not sound like much to you but it is a lot bigger number than 0. I have been working on it since February. I am still working on more but am also celebrating on this. Yea, yea, yea.

I AM JUST ABOUT WORN DOWN

As most of you know, I am trying to get some kind of periodic respite care for myself without putting James in a nursing home. So far I am unsuccessful. I am fairly intelligent. I am fairly articulate. Yet I feel that half the people in the U.S. with half my intelligence and half my verbal ability have managed to get a whole lot of what I want just a little of. How is this possible?

 

 

 

 

RESPITE

Thank Heaven for family and friends. 

My children, my doctor and my pastor have been on to me about getting some time off from caregiving.  And I am working on it. 

I started realizing how right they were when I began to be aggravated at people over trivial things.  A lady sat down beside me and she had on sandals and had a French pedicure on her toenails.  I thought to myself “well la-t-dah, look who  has time to have a pedicure while others of us have to live in the real world”.  I realized while I sat there that it was a stupid attitude on my part but I still felt that way.  I also got aggravated at a man telling me about his bad cold when my husband has everything in the world wrong with him – none of them curable.  It was only by the grace of God that I did not say anything sarcastic.  I am very talented at sarcasm.

When you have been out of circulation for as long as I have, it is hard to get back in.  I have a lady coming to stay all day with James every other Thursday.  She is an experienced caregiver.  I plan to get together and paint with some people I used to paint with.  The first day is day after tomorrow.  Fingers crossed. 

I am going to take beginner bridge lessons on Monday mornings.  I don’t have a firm commitment for those days but one of the Methodist Men is staying the first day and I am planning for the other days to fall into place.

The Methodist Men have been so wonderful.  They have been picking him up and taking him to their once a month meetings for a couple of years now.  And some of them come get him to go to lunch and do errands.  He is a little bit more trouble now since he is on a walker but no one has complained.  They have been a God-send for me. 

Of course my children have been wonderful.  Missy spends one day a month with him and Laurie spends one day a month with him.  They do odd jobs while they are here, tidy the kitchen, lay out Jas’ medications, etc. – so much help.  Drew comes down and spends a day often and does “fix it” things, services my car, changes light bulbs and heater filters and nails things back together that have come apart.  He nearly corked himself working on the sprinkler system last Summer.  Then they took turns last Summer and gave me a week off for a road trip with my cousins.  I had never done that before and I just loved it.  One of our granddaughters is living with us until May and she has been so much support.  They have saved me; if they had not been doing this, I would have been committed by now.

I have already had lots of support and really do appreciate it.  A caregiver needs lots of support to stay sane.  And I plan to stay sane – at least as sane as I have always been.

OUTSMARTED MYSELF ----- AGAIN

Do you ever outsmart yourself?  I do.  We finally got James to quit drinking a six-pack of Budweiser every night.  We switched it to O’Douls which is non-alcoholic.  So now he doesn’t walk into walls and fall on the way to bed.  I was afraid he would fall and break a hip and then be bed fast.  When I would bring in hot beer I would usually put a couple in the deep freeze to hurry and cool off.  So I put in a couple of O’Douls the other night.  He did not drink them and the next morning they had frozen and exploded all inside the deepfreeze.  He kept saying he did not think beer would freeze.  I kept saying I didn’t think it would either.  It finally dawned on me – no alcohol it freezes!   Duh!!!

A SAD DAY

Spent the whole day in Dallas at doctors Tuesday.  Exhausting.  Got another neurology opinion.  She agrees he has all the signs of hydrocephalus.  But she does not recommend treating it.  With all the other things wrong with him the improvement would be so minor and the treatment so invasive.  They would drill a hole in the skull, go down into the center of the brain where the fluid is and put in a shunt from there down through the neck and into the stomach to empty the fluid into the stomach.  She said she would do whatever we wanted.  The children and I had already agreed that he had been through enough torture.   When asked what he thought, he said he would do whatever we thought best. 

I asked why it took him so long to stand up from a chair; she said it was part of the Parkinson’s and also the  neuropathy (I hope I have the right word here – lack of sensation). 

A sad day. 

NEW ROOMMATES

 New roommates!!!!!  Kelley Anne and Gunner moved in with us this weekend.  They will be here until May.  Missy said “GET READY FOR A NEW LIFE”.  I am looking forward to it.  My poor cat, Cyril, is about to have a nervous breakdown.  Gunner is a two year old yellow Lab, weighs about 70 pounds.  A truly handsome dog; he could be in movies.  And soooo sweet.  And energy like you have never seen.  If he were a child he would be on Ritalin. 

Kelley Anne is just as beautiful and just as sweet and a nice, calm person, easy to be around – not at all like Gunner.

ANOTHER SEIZURE

He had another seizure.  Now he is taking anti seizure med - Keppra.  Each time he has had one for the next two or three days he is in worse shape mentally and physically.  The day after he had it he was sure he was in South Louisiana and that he had driven the truck home form the well site.  The Pickens knew this but he needed to get back working.  He has been sure we dropped someone off someplace and can't remember who it was.  He was still doing this last night.  We bought him one of those 4-prong canes but he doesn't use it well.  Half the time he carries it not toughing the ground.  I am finding this very sad.

I was just about used up Saturday, so glad Kelley came and spent the day.

We will go to sunday school and church today.  He always wants to do this.  Hope it will be good for him.